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Batten disease
Neuronal ceroid lipo, Vogt-Spielmeyer
A degenerative disease of the neurological system resulting in seizures and a decline in visual
acuity, cognitive and motor skills.
Useful Links
A research and support group which discusses the disorder, its history and the differentiation from other similar disorders. Has a comprehensive list of resources and links:
This medical website provides information on the disorder, treatment, prognosis and research being undertaken. It also has a list of references:
A university website with information about the disorder, who to contact and further links:
Information on Lysosomal diseases, support groups, newsletters and forums
Support Groups
Person/Organisation:
Batten Disease Support Group
Postal Address:
C/- Lysomal Diseases NZ
Phone Number:
Fax Number:
Email:
Person/Organisation:
Lysosomal Diseases New Zealand
Postal Address:
125 Cuba Street
Petone
Phone Number:
04 566 7707
Fax Number:
04 566 7717
Email:
lysosomal.info@nzord.org.nz
Support Resources
Published in 2002 by Parker, Philip M., Parker, James N.
Published in 2002 by Parker, Philip M., Parker, James N.
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