Beckwith-Wiedemann Syndrome
BWS, Exomphalos-macroglos, EMG
A rare congenital growth disorder which features enlarged tongue, typical facial features and
increased growth of various parts of the body. Intellectual disability may be present.
Useful Links
A Service of the U.S. National Library of Medicine provides fact sheet on Beckwith-Wiedemann Syndrome:
A university website with information about the disorder, who to contact and further links:
Describes symptoms, characteristics, health risks. Provides resources and links.
Support Groups
Person/Organisation:
Beckwith-Wiedemann Children's Assn of NZ (Inc)
Postal Address:
P O Box 37 344, Halswell
Christchurch
Phone Number:
03 322 5464
Fax Number:
Email:
bwcanz@bwcanz.org
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