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Cornelia de Lange Syndrome
De Lange 1 Syndrome, Amsterdam dwarfism
A rare congenital condition characterized by small stature, small head, bushy eyebrows that may
meet in the center, poor muscle tone and moderate to severe intellectual disability.
Useful Links
Website provides basic facts, articles, diagnostic protocols,access to Reaching Out a journal on the topic, etc.
This website provides information on research, events, discussion group, newsletter and more
Support Groups
Person/Organisation:
Cornelia de Lange Syndrome Support Group
Postal Address:
11 Winsomere Crescent, Westmere, Auckland
Phone Number:
09 378 0720
Fax Number:
Email:
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