Disabilities and Diagnosis

Crouzon Syndrome

Alternative Names
Apert-Crouzon, Craniofacial dysosto, Oxycephaly-acrocepha, Vogt’s cephalosyndac

Description
A congenital condition where parts of the skull bones are fused together causing intellectual disability, difficulties with breathing, feeding and vision.

Useful Links

Crouzon Support Network:

An American parent support page with information about the disorder, the organisation, personal stories and links to further sites:

Pediatric Database (PEDBASE):

A paediatric fact sheet that provides a brief overview of the clinical features and management of the condition:

Family Village:

A university website with information, who to contact and further links:

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