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Apert’s Syndrome
Craniosynostosis, Acrocephalosyndactty, Syndactylic oxycepha, ACS1
This syndrome is characterized by specific malformations of the skull, midface, hands, and feet.
There may or may not be an intellectual disability.
Useful Links
A parent developed website providing information on features and genetics with a list of further links and support:
A foundation website with information on causes, features and treatment of this condition:
A parent developed page with a brief introduction of this disorder and extensive links and support:
Support Groups
Person/Organisation:
Apert Network
Postal Address:
6 Peter Mulgrew St, Avondale, Auckland
Phone Number:
09 627 9137
Fax Number:
09 627 9137
Email:
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